Say Hello/Contact

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I am always interested in finding out who views my blog, follows my blog, what interests you in following my blog and what interests you in general!

Most of what I started writing about when I started this blog was about having a chronic illness but I am finding that writing has done something to me… it has some how heightened my senses. I listen more. I see more. I want to learn more.

And the best place to learn, I am finding is by hearing from other people about their interests and their journey through life.

So feel free to say hello and let me know a little about yourself if you’d like – like why you chose to view my blog, why you chose to follow my blog if you did that, where you’re from, what makes you happy and how you find joy.

Your thoughts are important to me so don’t be shy. Feel free to leave me a comment any time. Or you can reach me at my email address: sarcoidosissoldier@gmail.com

Many thanks for taking the time to stop by!

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42 thoughts on “Say Hello/Contact”

  1. iamchronicallywell

    Hello! Thanks for visiting my blog; I thought I’d come by and visit yours as well 🙂 Your dogs are adorable, and I can already tell that I am going to be “Like”-ing some posts as I look around your page. Hope you’re having a good day! -Nic

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    2. Thank you – You have such a gift with words and transforming the very real emotional/physical challenges that many of us face with this illness. I realized upon being off on medical leave and not having a lot of activities/work to occupy my mind re: fatigue/other symptoms – that I actually became more mindful of my situation and had to truly face my own mortality for the first time. Scary but actually hopeful for me because I realized I was not attending to me in the way I needed to – now that I am off the roller coaster I am rethinking my present and future – I was going to retire in 5 years, now I am trying to see if I can retire now or in the near future and focus more on my self-care. I am glad I found your blog!
      Susan (SKG1)

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      1. Hi Susan – Thank you for stopping by the blog. I am glad you are rethinking your choices and realizing that YOU are important. It’s such a difficult thing to start putting yourself first. It felt selfish to me at first but now I know I am actually better able to be present for my family and friends in my own life. Looking forward to getting to know you better here!

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  3. Hello Sarcoidosissoldier! You have been chosen as “The Winner” of my “Cutest Pet Contest.” Please message me with anything you would like the viewers to know about your pets and I will use that Bio as well as photos of your pets on my blog post for the day. I will also mention the name and link of your blog. I’d like to do this by tomorrow evening, Monday, November 24, 2014 so please send along the information ASAP. Thank you and Congratulations Lisa!

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  4. I know I nominated you for the lovely blog award but I put you in my Liebster award post as well!

    This is an award for new bloggers with less than 200 followers.
    This a great way to do some networking. The Liebster award nominees are chosen by fellow bloggers. Each blogger that accepts chooses 11 other blogs to nominate, and so on, so it helps those of us with few followers get out there and be seen.

    If you choose to accept the nomination, there are a few things for you to complete and post on your site. Take a look at the requirements, you can see them at the link to my Liebster award post, then see what you think.

    After you select your nominees, feel free to cut and paste parts of this message in order to make your own version. That is what I did.

    You are not obligated to participate, but it would be very beneficial for you to do so.

    The details and questions are in my post at http://lovemylifeanyway.wordpress.com/2014/11/30/liebster-award/

    I was nominated by cjohera. You can find her post with her questions and answers at https://cjohera.wordpress.com/2014/11/28/leibster-award/

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  5. Wearwolf

    Dear Smaller Human Being…

    Today’s blog is beautiful.
    It’s reflective.
    It’s introspective.
    It’s healthy.
    It’s soothing, isn’t it?

    Now, I’m hungry.
    What do you have to eat?

    WW

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  6. Terri

    Hi Sarcoidosis Soldier,
    I am Seab, I have talked with you before on the Inspire Website.
    I have Pulmonary Sarcoidosis (Stage3), Fibromyalgia and some other stuff I won’t bore you with.
    I live in Surprise Arizona, and have lived in Arizona my whole life. I just love Surprise!

    I have a really hard time with the social isolation I have with this disease. I used to be really outgoing and had lots of friends. Now, I cannot make any plans as I don’t have the energy to go out many days. The friends have moved on.
    The new normal, right…

    I do look at life so differently now that I have this disease. I appreciate the little things in my life more, my family, taking a walk outside.. Arizona is just beautiful right now. (it is not hot yet!)

    I really enjoy your blog and your dogs are just adorable! Please give them a pet from me.
    Thanks for listening!
    Terri (a.k.a.Seab).

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    1. Hi Terri,

      Nice yo meet you outside of Inspire! I totally get going from being outgoing to feeling isolated…same for me. Not working anymore has been really hard for me as well and I am always trying to hopelessly figure out how to get back to where I was…a useless exercise.

      I’m glad you like the blog. It really helps me. It keeps my brain functioning, It gives me an outlet for all my thoughts and hopefully my experience and thoughts are of use to others sometimes…..who know! LOL!

      I’m here to listen any time…you also now have my email so we an keep in touch that way too if you want.

      Take care!
      Lisa

      (AKA – Sarcoidosissoldier/ZoeyandAbbysMom)

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  7. Susan

    Hello my friend. The blog is lovely. I love it. I also love the pictures. The one of you and Abby on the beach is my favorite. We had a great thing going at that wonderful hospice. Taking care of patients, quality, each other. Miss you but am really at peace to know you are. Take care, Susan

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  8. Chris

    Hello Sarcoidosis Soldier,
    Hope this finds you having a good day. I ran across your lovely blog and appreciate your thoughts and feelings. my husband has pulmonary sarcoid and perhaps Nero sarc (not yet verified). He was diagnosed 2 years ago and you both have the same symptoms and very much the same feelings.
    Thank you for sharing your story and thoughts on living with a chronic illness.
    Peace to you on this journey,
    Chris

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  9. Lisa,
    I just wanted to say hi and congratulate you on your blog. I appreciate your reflectiveness and honesty. I am a fellow blogger/writer/storyteller and sarcoid patient. If you are ever interested in working on a collaborate piece let me know.
    Be well,
    Jay

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    1. Hi Jay – Thank you so much for stopping by and sharing your blog with me. I just read it and “liked” it on FB. It might be fun to collaborate some time. I’ve never done that before and might be really fun to do with someone else who shares the same journey! Take care and be as well as you can be! – Lisa

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  10. Samantha Liston

    Good morning!
    I came across your blog and am looking forward to following you and reading your writings. I myself was diagnosed with Neurosarcoidosis in 2004 after becoming ‘ill’ and lucky me, I seem to have the version of sarc, that is active, more than not. So, I wanted to say ‘Hello!’ and introduce myself.
    Have a GREAT day!
    Samantha Liston

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  11. Hay

    Hi, I’m a one month-ish into my official diagnosis. But 6 months into being unwell. I’m so pleased to find this blog. In a very short space of time I have had an attitude to life change- don’t worry about the little things just get on a live life!

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    1. Hi – Thanks for contacting me! I’m glad you are enjoying the blog. The beginning of the sarcoid journey is tough…a lot of ups and downs but it sounds like you’ve got one of the hardest parts figured out already…enjoy life…it’s short for all of us! Hope you continue reading!

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    1. Hi Equestrian57 – I’m glad you found my blog and that it has been helpful. Being newly diagnosed is the hardest part of having this disease, I think. There are still so many unknowns and a lot to learn. Please feel free to use my contact email any time, if you have questions or need support! There are also a lot of good FB support groups for sarcoidosis, if you’re not part of them I highly suggest you look them up and join any that look like they might be of benefit to you. Connecting with others who share this disease is a HUGE part of learning to manage living with it. HUGS to you!

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    1. Hey there – So glad you found me…I’m so sorry that you are not feeling well. A lot of our Inspire peeps are in a FB support group called Sarcoidosis and Neurosarcoidosis SARC WARRIORS. You might want to join it if you are on FB.

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  14. Dave

    Hi there [wavey] from the UK. My names Dave.

    I live in Yorkshire. The shire of York! [Old York, jorvik, not New York!] Just in case that was not clear, which it was. Eh?!
    Babble babble tripe and wabble.

    Here I am sitting in my dressing gown, at 44 years old, in my parents house, after losing my house, business, life etc etc.

    You know how it is. Good days, bad days, but never normal days. I’ve forgotten what it feels like to feel normal again. Have you?

    Just thought I’d pop my head in and say howdy doody.

    7 years, 6 years pf pred and methotrexate, cant work, cant do anything……Limbo, thats the word isnt it?

    Im stage 3, depression kicked in a few years after diagnosis, lorazepam, citralopram….

    Dont you get sick of, ‘well you look ok’ [?]
    :0)

    Big sigh, goodbye…..Dave

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    1. Hi Dave – Thanks for dropping by my blog and for taking the time to send a comment. I’m very sorry that you are having such a rough go of this stupid disease! Hang in there…one day at a time! Trying to find a little joy in each day is how I survive this disease. I used to get sick of the “you don’t look sick” comments but now I know that people are just ignorant about what they don’t understand and I try to educate them. Not a lot about this disease, or any other, I suppose, is easy!

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  15. Mudfoot

    Hi, Sarcoidosis Soldier! My husband and I were just talking about you and wondering if you’re ok. We haven’t read anything from you in awhile. We certainly understand how hard it is to keep on producing, but we wanted to check in on you. You mean a lot to us both! ❤

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    1. Hi Mudfoot…Thank you for checking in on me. Yes, I am doing okay. I stopped writing as much because I felt I was becoming too repetitive and now only write when the mood strikes. But, you inspire me now to write again! I have also recently taken up learning to draw and paint and this is taking up much of my time. I probably do need to get back to my first love…writing…again soon! I hope you are both doing as well as you can in the face of this stupid disease! Thank you for checking on me…it means far more to me than I could put into words!

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  17. Erica

    Hello! I would just like to say how great this blog is. I have had systemic sarcoidosis for almost 4 years now, and to be honest, I barely know anything about my disease. It’s terrible. I see about 5 or 6 specialists and none of them have told me anything about it. I constantly hear “well we don’t know a lot about sarcoidosis “. I’ve been in a coma for two months, spent countless months upon months hospitalized from complications from sarcoidosis, and still, no one has felt in any way inclined to educate me on what’s going on with my body. Why I’m constantly in so much pain. Why, when I catch a cold from someone, it takes three times longer to go away than the average person. Why I get stuck on words and stutter at times. Why I end up getting really confused at times and can’t seem to find my words. So basically, what I’m saying is, thank you. I’ve only skimmed through your page for a few minutes so far. But in that time, it’s been more informative than four years of surgeries , specialists and hospitalization. So thank you. Please keep up the good work.

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    1. Hi Erica – I am so sorry to hear that you’ve had such a difficult time with this disease! There is a lot that is misunderstood about it and unfortunately, not enough research gets done to learn more. If you aren’t on FB, you might consider joining as there are some really great support groups there too. Thanks for taking the time to send me a message and for reading my blog…Hang in there…You are not alone!

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  18. Almonie Goodwin

    I stumbled across this blog thru Pinterest. My husband was diagnosed with sarcoid in January 2018. I have always been someone who has had extremely bad anxiety and since the diagnosis my anxiety is greater. His sarcoid was discovered from a nasal procedure that he had done but before that he had lost his balance and was experiencing vertigo. A cat scan showed a nodule on his brain and where the nodule was located was pushing against a ventricle that caused him to leak csf fluid. He had to have a vp shunt put in. Originally they were saying he had lymphoma. Once the procedure was done with his nose thats when they said that he had granulomas in his nasal passage and the nodule that was on his brain was related to what was going on in his nasal passage. He is doing so much better but he isn’t as swift as he once was. Balance was restored but he still struggles with turning his head and being able to keep himself steady. This definitely has changed my outcome on Life altogether. I want him to become more aware of his disease and do things that will approve things overall for him like his eating and daily exercising. I try not to worry so much but the constant thought of death plagues me. I will definitely like to keep in touch with you and I pray that things are well with you. I need an outlet because although he is dealing with this disease I am trying to be as supportive as possible. Take care and thanks for creating this blog. Blessings…

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    1. Hi Almonie – Thank you for reaching out. Your husband (and you too) have been through a lot…very scary. Unfortunately, it is not at all uncommon for sarcoidosis to misdiagnosed for lymphoma. This disease is very unpredictable so I do caution you not worry about everything that you read about it. Your husband will have his own experience with the disease…with the right care and proper life style changes, this disease is much better managed but you have to also make sure you have docs in place that understand this disease. If you are on FB, there are some great support groups for this disease. I am the admin for two of them. The Sarcoidosis and Neurosarcoidosis Sarc Warriors Group and the Sarcoidosis Healthy Living Group. If you’d like to join them, I can add you. It’s a great way to be connected to a lot of us! I would be more than glad to stay in touch with you…you have my email address here through the blog…feel free to reach me there any time I can answer questions for you…Take it one step at a time…He’s very early in his diagnosis…There are still lots of reasons to be hopeful! Take care – Lisa

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  20. oparules

    Hi. I’m an old friend of Bob’s. He’s been telling me about your blog for a while. I’m just now reading it. Your an engaging writer! I subscribed. I do much work in pain management as a citizen expert. Sounds like you’re an expert too. Check out my blog and podcast here https://www.health-hats.com. Be well.

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    1. Hi – Thanks for checking out my blog…I appreciate it. Bob has told me about you as well and has occasionally sent me a link to your blog but I will check it out in more detail now…thank you! Nice to finally “meet” you! Take care!

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  21. Tammy

    Hi, I have been reading your blog and can totally relate! I am in a mess and overwhelmed at the moment because I have been in so much pain, losing my eyesight, multiple spine surgeries that went wrong, and so on and so on. I’ve been saying SOMETHING IS WRONG but most doctors don’t want to listen. I finally have one doctor, my neurosurgeon who listens and sees the problems and has been working to figure it all out. I kept past medical records which has been a blessing because it helped lead to the diagnosis of neurosarcoidosis. I had no clue what that was and started researching it. Honestly, I’m scared because I’ve had this for a LONG time! All the signs have been there since 2007 but doctors were looking for a quick fix and not the source of my problems. I had brachial plexus surgery and thoracic spine surgery within 5 months of each other and then diagnosed with RSD/CRPS and went through extensive ketamine treatments. They were a temporary fix. It looks like that was the wrong diagnosis and here I am today falling apart. It’s now my spine, my nerves, my brain, my eyes, my heart and my skin being attacked and not sure where else as of yet. I have an appointment this week to get the ball rolling. I’m praying this doctor will listen and find a treatment so I can feel human again!

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