Staging of sarcoidosis is as follows:
Stage 0: Normal chest radiographic findings
Stage I: Bilateral hilar lymphadenopathy
Stage II: Bilateral hilar lymphadenopathy and infiltrates
Stage III: Infiltrates alone
Stage IV: Fibrosis
I suppose I am in stage IV as I do have fibrosis…which is really just a fancy way of saying that my lungs are scarred from this disease.
That being said, the staging can be confusing to people. It is NOT like cancer stages. Stage IV sarcoidosis is not a death sentence.
The staging in sarcoidosis really only has to to with radiography and not necessarily with how a patient feels.
The staging can sometimes help doctors predict if the disease will be more chronic in nature based on what is seen on the imaging.