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Sarcoidosis is called a “snowflake disease” because no two people experience it exactly the same way. While some people have similar symptoms and stories, the disease is very individualized. How it will progress is anyone’s guess. How each person responds to treatment is also a medical mystery and the number of symptoms one might experience differs greatly. In fact, the symptoms of sarcoidosis are so vast that for today’s “Sarcoidosis Awareness Month” post, I am simply going to list all of the symptoms/complications that I am aware someone can have with this disease. I’m 100% sure that after I publish this list, other suffers will have more to add!

  • Shortness of breath*
  • Dry cough*
  • Chest tightness*
  • Wheezing*
  • Hypoxemia*
  • Pulmonary hypertension
  • Swollen lymph nodes*
  • Headaches/Migraines
  • Fatigue*
  • General malaise*
  • Fevers*
  • Skin sores*
  • Skin discoloration*
  • Itchy skin
  • Rotting teeth
  • Bone pain*
  • Formation of cysts on the bone*
  • Muscle pain*
  • Muscle weakness*
  • Numbness and tingling to extremities
  • Joint pain
  • Arthritis
  • Nerve pain*
  • Small fiber neuropathy*
  • Bell’s palsy
  • Stomach pain
  • Digestive problems
  • Food sensitivities*
  • Bladder problems
  • Problems sleeping/Insomnia
  • Sleep disorders/Sleep apnea
  • Brain fog and confusion*
  • Sexual dysfunction
  • Night sweats
  • Being cold all the time*
  • Wild fluctuations in body temperature
  • Blurred vision
  • Sensitivity to light*
  • Blindness
  • Unintended weight loss*
  • Chest pain
  • Fainting*
  • Dizziness
  • Irregular heartbeat*
  • Edema
  • Complete organ failure
  • Stroke
  • Depression
  • Nasal stuffiness
  • Excessive nasal drip*
  • Frequent nasal infections
  • Hoarse voice
  • Kidney stones
  • Hearing loss
  • Seizures
  • Enlarged liver
  • Enlarged spleen
  • High blood pressure
  • High cholesterol
  • Hypervitaminosis-D
  • Weight gain

(* My symptoms)

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