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Sarcoidosis is known as a mimicker, an imitation artist. It often presents itself in disguise. Sarcoidosis is an impersonator. It confounds the medical community, fooling them even with all their hight tech testing, into thinking it is something other than itself. A biopsy the only real way to prove its existence but even these come back confused and inconclusive all too often, so more poking and prodding becomes required.

Sarcoidosis wears a mask. It resembles other diseases, the dislikable twin to cancer or MS or Lupus to name a few. Sarcoidosis is a shapeshifter, changing its identity from patient to patient, metamorphosis at its finest, mutating its presentation, inaccurately convincing the medical establishment that it is better than other equally awful illnesses. “The good news is, it’s not cancer.”, we hear all too often…fooling us into thinking everything is going to be okay. Sometimes it is and sometimes it isn’t. Sarcoidosis is unpredictable.

Sarcoidosis is a professional at camouflage, often lurking, hiding just behind the surface. It patiently waits to attack and as it does, it laughs all the while, knowing its capacity for parody. This gift gives it time to cause its damage and leave its mark, for it knows it will not be diagnosed properly and its host will suffer, that we will be treated like pin cushions for answers to our strange symptoms, treated like crazy people and told its all in our heads.

Sarcoidosis thrives on creating chaos and misdirection. It loves living in obscurity. It knows it has the advantage this way. Don’t be fooled by its secretive ways or its mystifying persona because even when its symptoms recede, it leaves a gully of destruction, a canyon of wreckage, a gorge of obliteration in our bodies and our lives, all the while taking pleasure in knowing that either it or its treatment has changed us forever, leaving us utterly shaken and entirely on our own to figure out how to pick up the pieces and put our lives back together.