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  • There is no known cause of sarcoidosis.
  • There is no known cure for sarcoidosis which means treatment is aimed at symptom management…only. (More on this in an upcoming post)
  • Some of the most common symptoms of this disease include coughing, fevers, chest tightness, fatigue, skin lesions and blurred vision, although there are a lot of other varied symptoms patients experience. (More on this in an upcoming post)
  • Sarcoidosis is diagnsed by exclusion and a biopsy is often the only way for a more definitive answer, although even these can come back inconclusive.
  • Sarcoidosis mimics other diseases like lupus, MS and cancer, to name a few, which is part of the reason it is hard to diagnose.
  • Sarcoidosis usually affects people between the ages of 20-40 years (in 70-90% of cases), however, it can develop at any age. And, because diagnosis is not easy, some patients probably have the disease much longer than the date of their diagnosis.
  • Sarcoidosis does not discriminate and affects people of all ages and races. (However, it’s more common among African Americans and Northern Europeans. In the United States, the disease affects African Americans somewhat more often and more severely than Whites).
  • Sarcoidosis is somewhat more common in women than in men.
  • No one can predict how sarcoidosis will progress in an individual patient which is why it is often referred to as a “snowflake” disease.
  • Sarcoidosis is not contagious.
  • Symptoms can appear suddenly and then disappear or they can continue over a lifetime.
  • This disease can also remit and return years later.
  • Some patients have to take medication to keep the disease under control for a life time while others never need treatment at all.
  • About nine out of 10 sarcoidosis patients have some type of lung problem from this disease.
  • Eye disease occurs in about 20%-30% of patients with sarcoidosis.
  • The skin is affected in about 20% of sarcoidosis patients.
  • Sarcoidosis can affect any organ in the body.
  • The mortality of sarcoidosis is <10% and death usually is the result of problems with the lungs, heart, or brain.